As I am now able to look back at this day with more information and notes, this day starts to not make more and more sense, and where I really started to question if I was being told the truth, because the day before she was supposedly Covid and Pneumonia free. No where in her medical records can I find a note that states that condition. On the contrary they had to take off a sedative drug called Propofol "that I was originally told that they were giving to control her blood pressure" for fear she would contract Propofol Injection Syndrome. Which for all I know may have or not have already taken place. The reason I conclude that is because on this day her sedation drugs that she was now introduced to follow a palliative care protocol, which I was never told. Well after reading in the book Undercover Epicenter Nurse on pages 88 and 89 Nurse Erin talks about this very thing happening to patients being put on "Comfort Care" but the families were not notified because technically it wasn't considered "Comfort Care" even though that was pretty much the only treatment taking place. So now I'm just left with more questions. Why am I reading notes that her health records were unavailable even though her records are through the same medical provider group? why were nurses asking her how much alcohol she drank and why was I never asked this question. Which this leads us to a story shared to me and others, and he asked if I would she His wife's story I agreed I would.
0 Comments
Here is Pauls story which has many similarities of LT's story. He asked if I would share and publish his heartbreaking story of what happen to his wife, so in honor of all of those affected by the hospital protocols we support you, and may these stories help save others lives. This is Pauls story below...........
Here is my wife’s unfortunate story that has destroyed my life and has devastated our children’s lives. It shouldn’t have happened she should still be here today. My wife was a 45 year old healthy beautiful vibrant wife and mother. Who loved me and our children unconditionally. She was a amazing wife and mother she was a amazing woman. She was the definition of wife and mother. On Saturday night October 23 my wife started to feel bad. Our 5 year old daughter had been sick that week and I had been sick with a chest cold. So Saturday October 23 my wife started feeling bad. She we went to bed early. On Sunday October 24 she was feeling worse I asked her if she wanted to go to the hospital? She said if she felt worse she would go. I brought her some ibuprofen and some cold medicine and juice. I went to work on the house we just purchased we had to completely remodel everything. I was outside cutting some wood and our little girl came and said momma needs you/ I walked in and she looked bad labored breathing and sweating but she was cold when i touched her. I had to carry her to the car she was so weak. This was around 2:00 PM when he hospital was a hour away. When arriving at the hospital I got a wheelchair. It was a little after 3:00 PM at that time. The administration nurse took us back to get her vitals it took about 5 minutes to even get a oxygen reading. She was responding and answering questions. Her Temperature was 97 her heart rate was 165 her respiratory rate was 38 her oxygen was 74 and blood pressure was 92/40. The took her to a critical care room and put her on a bi pap machine. Then they moved her to a step down room. I stepped in waiting room to call our daughter who was home watching our youngest one. When I came back into her room there were two nurses in there. And I asked them what was going on with my wife? I was figuring Covid or respiratory infection. The responded by saying she can’t seem to stay awake it appears she is having a overdose. I told them she wasn’t on drugs so that’s impossible. I told them to give her a drug test they said they were going to this was a little after 5. They had started her on fluids and Narcan. From that time till 830 the nurses came in three times and were hateful and rude. At 830 PM I told my wife I was going to check on our daughter. As I stated we had just moved to a fairly rural part of NC and had had some cars come down that we had to run off. The woman we purchased the house from hadn’t lived there for at least a year. So I wanted to check in our girls and come back. I told my wife and she held my hand and told me “ I love you I mean that I want you to remember that don’t ever forget that” I told her I loved her to. And she emphasized again “ I mean that I love you I always have and always will remember that. You will forever be my always”. And I kissed her head and she closed her eyes and laid back in bed. Little did I now that would be the last time that I would speak or see her again. I still didn’t think it was life threatening. When I got home our 22 year old son was there he asked how his mom was and something hit me and I knew she wasn’t going to make it and I told him that. He got mad and told me not to say that. After I checked on girls I was getting ready to drive back to hospital my son said he was going with me. In the drive back it was around 945 PM one of the nurses called my phone. He asked what type of drugs she was on. Well I was livid I asked him if he could read? He asked what I meant I told him you gave her a drug test almost five hours ago so apparently you can’t read. He told me he hadn’t looked at the results yet. I hung up on him. About one minute later the doctor that had just came on duty called me and apologized apparently she had overheard the conversation. She said your wife isn’t having a drug overdose her drug test was negative. I told her to tell her staff that she said she just did. She explained my wife had double pneumonia with her right lung completely impacted. And that has led to sepsis. I didn’t have a clue what sepsis was at the time she explained it to me and said she was going to start treatment and she hoped it would be in time. I asked her what she meant she explained how time sensitive sepsis was and what septic shock could do. I told please don’t let anything happen to her she was my everything. At 1015 PM my cell phone rang I answered and she asked how close to the hospital were we. I replied about 25 minutes if you are calling me to tell me she is not going to make don’t you dare call and tell me that. She stated that she had coded out and they brought her back but didn’t know if she was going to make it. By the time we got to hospital they had brought her back four times. And the doctor had to put me in a room cause I was a complete wreck and she asked what I wanted to do I told to save my wife do your damn job you haven’t all night so do it now. They brought her back 7 times. My son told them to stop they had broken her breast bone her ribs and she had been without oxygen for 28 minutes. He went and told his 45 year old mother goodbye and we loved her. I couldn’t go back I didn’t want to see her like that. She passed at 203AM October 25. The doctors came in there and my son asked why they couldn’t save his mother. They said they didn’t start treatment in time. If they would have started when she got there things may have been different. And another doctor was there looking over her chart and he asked why where they treating her for a overdose why were they giving her Narcan. She had no signs of overdose except not being able to stay awake and that is a sign of sepsis. And with a oxygen level of 74 that’s why she couldn’t stay awake. Security escorted me and my son out along with sheriff officers. I lost my mind I knew they had Mede numerous mistakes I knew they killed my wife. They all got to go home to their families and mine now is devastated. Now we are left to deal with this hell. I can’t remember anything can’t focus I am never happy. Our daughter who is 7 now has anxiety and panic attacks scared something is going to happen to me. I have had to start homeschooling her cause she is scared to leave my side. My other children have had bouts of depression and anxiety. All cause of negligence lack of urgency and misdiagnosis by the staff at the hospital. This was something that could have been prevented if they would have paid attention to her vital signs. We have a lawyer and they have sent her records to a medical expert and they have made a report of clear negligence and deviation of current clinical guidelines. And has said to accept the case. We are sending her records to another expert just to verify that they agree with the first opinion. If they do then we proceed. And I don’t care about money I want accountability for what they did. I want protocol to change. If someone’s life is save then at least her death will mean something. In loving memory of. Teresa Juhl. You will forever be my always Today discouraging news as we are advised that her lung condition is worsening, she had developed coughing fits and spiked a fever which indicated a possible bacterial infection, so we started asking about the results from the sputum test, but hospital had no answers for us at this time. They noted that they were doing all they could to keep her stable and working on getting us answers on why she was trending in the direction of a worsening condition. At this point I wanted more information so I requested to have access to her medical portal. The request was declined by many, because since she was incapacitated she was unable to give me consent. I thought as being the husband I had medical right since we were married. After getting off the phone with the hospital I was very discouraged on the lack of information being provided. Considering we not allowed to visit her at all and all communications were over the phone, and doctors only had time to contact me every other day. contacting friends and looking for lawyers to help me gain access to her medical portal, every minute counted we were running out of time to get answers. I'm so thankful for have been surrounded by family and friends that were part of the medical community. As I'm still searching for a lawyer to get us access to the hospital. Her mom says let me make some quick contacts I believe you still have rights none of this sounds right to me. Shortly after this conversation she tells me go and get your marriage license and bring your drivers license that's all you should need to gain access to her medical portal. We arrived at the hospital went to the office we were directed to and we were able to gain access to her portal. This was a God moment, really didn't want to have to goto this extreme to gain access to what I believe I had the right to have access to. God came through and showed up in this very moment it was such a Blessing to see God move in a time of difficulty. We praise Him.
Today her condition has improved reports that Covid and Pneumonia are gone, so as we pray for healing and her to trend in the direction of healing we look to the Lord for His healing hand.
Today we get some positive news that her lungs have improvement, oxygen levels are improving. At this point we just keep her lifted up in pray as the Lord has control over all things.
Today she is stable and able to prone well, Many family, friends and church goers gathered in front of the hospital today to pray for improvement in her condition, as we wait to hear from doctors.
Well now my wife now is in ICU on the Ventilator. The only good thing about this was now we could talk straight to the nurses at the nurses desk. We were able to be a little more informed about what was going on with her condition. Things seem to be going ok up to this point other than her having to be vented. So we prayed!
One year ago today, I went to that hospital first thing in the morning as I had planned the night before. I get to the hospital its around 7:00am, the security guards at the front desk said they did not open to visitors till 8:00am. Side note why were security guards needed? I ventured around the corner to kill some time grabbed a bite to eat, just as I’m finishing, I start getting frantic text messages from my wife. “They are talking about ICU”. Side note the night before they were trying to convince her to be ventilated, even though the nurses told us that was not the case”. I told her they need to wait fo me to get there. The doctors call me as I’m walking back to the hospital, telling me that she needs to go on a ventilator, she’s exhausted and she is breathing 60 breaths a minute. Shallow breathing. Instead of the doctors meeting with me, which I thought they would do. I spent 45 minutes pacing the parking lot outside the hospital arguing with the doctors over the phone, she told doctors “i do not want to go on the vent. I told doctors they need to respect her wishes, I’m her advocate and her wishes need to be respected. They told me that had done all they could and she would most likely die if she was not vented. I requested a second opinion from another doctor. That in turn the doctors told me why do you want a different doctor we are the doctors. I stood my ground and requested this doctor be brought in. This doctor was an ENT. The doctors questioned why I would want an ENT to see her. The ENT ended up not having access to that hospital. Once I realized getting a doctor in there was not going to be an option. I requested she be transferred to another hospital. That requested was denied by the doctors they said she will most likely die she needs special equipment in order to make that happen. As I said before this went on for 45 minutes of back and forth text messaging friends to get second opinions and other drug protocols. Final the doctor changes his tune as says well since we have already done all we can, we want to just put her in ICU to monitor her condition so that if we feel she needs further care we can provide it. They assured me that they would only put her on a vent if it comes down to an absolute emergency situation. I told them that was the only way I would agree that this be done. In this moment I feel as though I failed her, because within fifteen minutes of me agreeing to put her in the ICU she was put on a ventilator. I felt hopeless and crushed that we could not be side by side making these decisions together. She obviously was alert enough to know that she did not want to be vented. At this point I feel I failed her. We talked about this is this was ever to happen she did not want to be vented. I felt defeated when I was informed moments later that she was put on a ventilator. These are the last words we spoke to each other for the rest of the time she was in the hospital. I don’t even know how this was possibly legal. I thought we had medical rights to be advocates for our loved ones.
In the midst of LT being sick, she had an event planned “The Gathering”. We were putting this all together in her honor. Well we finally got to a point where I could get her phone to her along with a journal and a pen from a dear friend. In delivering these items I was escorted to her floor, to the nurses station. I asked to speak with a nurse, the request was denied no one was able to talk with me about her condition. I left the hospital yet again without any answers on my wife’s condition. This is the only night we ever got to talk with one another. Later that evening she was in a panic telling me that they wanted to put her on a ventilator. We quickly contacted the hospital and they denied of any such request had been made by doctors or nurses. It was at this point that I realized I needed some real answers from the doctors and nurses. I took the next day off and planned to be at the hospital in the morning.
Finally got to talk to a doctor, LT was stable. Couldn’t get doctor to agree to contact us every day as the hospital said they would. Had to take what we could get for information. Visitors were not allowed. Couldn’t get nurses to speak to us we were very much in the dark as far as what was really taking place. You know when your unable to talk to anyone whether it is hours or day, every minute that goes by feels like an eternity. God brings patience in these times.
|
AuthorMy Name Is Dan and I am now recently a widower from my Best Friend of 25 years, and now have to navigate raising two teenagers without my help mate, and this is her medical story along with others that have similar stories of their own. Join me on this journey as we find help and healing in a broken medical system. Archives
October 2024
Categories |