For some of you that have been following this medical story of my wife, some of you may know that I feel I failed her when she needed me most. I had to make decisions and some of those decisions were not ones that her and I wanted but were told it was the only way, but in most of her treatment I was not included in any of the decision making process. The past few months I have been discouraged thinking if I had only do this or that she may still be here. A nurse that I have been following for a while put my mind at ease today. I have to remember that the decisions I had to make were with the information I had at the time, not the information and knowledge I have now. She writes this.......
When we know better, we do better. 💕 Hindsight often provides us with a clearer perspective and a deeper understanding of situations. It's natural to wish that we had known then what we know now, as it could have influenced our decisions and actions. However, it is essential to offer yourself compassion and grace. Recognize that you were operating with the knowledge and resources available to you at that specific point in your life.
Acknowledging that you were doing your best given the circumstances is a testament to your growth and resilience. It signifies that you have learned from your experiences and have evolved as an individual. Instead of dwelling on regrets or self-blame, use those insights to empower yourself in the present and future.
Life is a continuous journey of learning and growth. Embrace the lessons from the past, be grateful for the wisdom you have gained, and continue evolving into the person God intricately designed you to be. No one is exempt from making mistakes, so be forgiving of yourself along the way.
#KnowBetterDobetter #Wisdom #LifeLessons #EvolvingWithPurpose NurseErin.org 👩🏻⚕️💫
You can read more stories about families that unfortunately have had to deal with the same fate as ours with the story of my late wife. You can read these stories at a website called Fight for Christy click on link tab below.
The phone rings early in the morning 2:15 its the Dr. advising me that LT's heart stopped and they performed CPR and resuscitated her, but they did not think that if her heart was to stop again that she should be not be resuscitated again, I agreed and hung up the phone. The phone rang again it was now 2:30am and they advised me that her heart had stopped and she had passed. I was crushed, but I praised God because He answered prayers from in the car outside the hospital. This is when I realize God has a plan and it's not mine.
By this time I was emotionally and physically exhausted, I had fallen asleep on the couch. Unable to sleep in our own bed because she was not here. The doctors had tried to reach me multiple times that morning I woke up and realized they had called. I returned the phone call to the Doctor. He advised me that they finally had performed a sputum test, but while they were performing the test her heart stopped. I had a glimmer of hope when they told me the test had been performed, in my mind I was like good they might actually come to a conclusion what is causing her infection. But when the rest of the news came my heart sank. I didn't know what to feel after that. I hung up the phone and started texting and calling people with updates. Within those updates I was being asked by others are they letting you communicate with the iPads they have. I was dumb founded, I asked what iPads? People were informing me that the hospital had ways for us to communicate and talk to LT, but unfortunately I guess with all the chaos in the hospital with the doctors and nurses this was never offered to us. Another blow to our hearts of the lack of communication we had with LT.
Well it was now after church. I was hanging out with her mom when I received a phone call from the Dr. and missed it. I returned the phone call, the nurse answered the phone and advised me that the Dr was busy , but I needed to make time for him. I hung up the phone and told her mom to get ready and get in to the car we were going to the hospital. On the way I called one of her best friends and told her to meet us there, and I was hopeful because as you read in the prior post they finally did a sputum test. With that I was sure we would have some answers to her condition. We are now all sitting in the lobby. The Dr calls, I advise the Dr that I want to meet with him. He told me I have no such right for that request. I advised him that I was her advocate and I was requesting a meeting, he affirmed that he did not like my tone. I just relayed back that if he did not want to meet with me in person that our conversation was now over. He put me on hold and came back on the phone and advised me that we could come up to the ICU floor. We all went up to meet with the Dr. As the nurse at the ICU nurse station slid LT's wedding rings across the counter telling me I would probably want these back, the Dr. proceeded to tell us that LT's lung went fibrotic, with that being said "I told the doctor to give her a lung trans plant!" He advised that they don't do that for covid patients, and advised that at this point they were waiting for her heart to stop. The doctor had reassured us that they had done all they could for her. As we all stood there sobbing and I looked at her beautiful lifeless body through ICU glass, not being able to tell her goodbye and hold her hand to pray with her. My heart sank very deep in my chest as I realized at that moment she was most likely not returning to her earthly home. We calmly composed ourselves and exited the hospital. Got into the car it was her mom and I, and we just prayed that the Lord would either keep here with us or take her home to Him, but I prayed that He would make that decision quick I did not want her to have to suffer or having us to make life or death choices we left it in Gods hands at this point.
Todays prognosis nurses say oxygen levels are worsening trying to get ventilator adjusted properly. She's stable and comfortable.
Todays condition is steady with yesterdays prognosis stable not getting worse not getting better just trying to keep her comfortable. Still investigating bacterial infection, with no updates at this time. There's that word again "Comfortable"!
As of 4:00am this morning I was now able to access her portal. This was nice where as even though I'm not a doctor I can look at stats and she how she is trending. Stable today and no real changes in condition at this time. The nurses State she is "Comfortable" now after reading her medical records I am now understanding what "Comfortable" meant
As I am now able to look back at this day with more information and notes, this day starts to not make more and more sense, and where I really started to question if I was being told the truth, because the day before she was supposedly Covid and Pneumonia free. No where in her medical records can I find a note that states that condition. On the contrary they had to take off a sedative drug called Propofol "that I was originally told that they were giving to control her blood pressure" for fear she would contract Propofol Injection Syndrome. Which for all I know may have or not have already taken place. The reason I conclude that is because on this day her sedation drugs that she was now introduced to follow a palliative care protocol, which I was never told. Well after reading in the book Undercover Epicenter Nurse on pages 88 and 89 Nurse Erin talks about this very thing happening to patients being put on "Comfort Care" but the families were not notified because technically it wasn't considered "Comfort Care" even though that was pretty much the only treatment taking place. So now I'm just left with more questions. Why am I reading notes that her health records were unavailable even though her records are through the same medical provider group? why were nurses asking her how much alcohol she drank and why was I never asked this question. Which this leads us to a story shared to me and others, and he asked if I would she His wife's story I agreed I would.
Here is Pauls story which has many similarities of LT's story. He asked if I would share and publish his heartbreaking story of what happen to his wife, so in honor of all of those affected by the hospital protocols we support you, and may these stories help save others lives. This is Pauls story below...........
Here is my wife’s unfortunate story that has destroyed my life and has devastated our children’s lives. It shouldn’t have happened she should still be here today. My wife was a 45 year old healthy beautiful vibrant wife and mother. Who loved me and our children unconditionally. She was a amazing wife and mother she was a amazing woman. She was the definition of wife and mother. On Saturday night October 23 my wife started to feel bad. Our 5 year old daughter had been sick that week and I had been sick with a chest cold. So Saturday October 23 my wife started feeling bad. She we went to bed early. On Sunday October 24 she was feeling worse I asked her if she wanted to go to the hospital? She said if she felt worse she would go. I brought her some ibuprofen and some cold medicine and juice. I went to work on the house we just purchased we had to completely remodel everything. I was outside cutting some wood and our little girl came and said momma needs you/ I walked in and she looked bad labored breathing and sweating but she was cold when i touched her. I had to carry her to the car she was so weak. This was around 2:00 PM when he hospital was a hour away. When arriving at the hospital I got a wheelchair. It was a little after 3:00 PM at that time. The administration nurse took us back to get her vitals it took about 5 minutes to even get a oxygen reading. She was responding and answering questions. Her Temperature was 97 her heart rate was 165 her respiratory rate was 38 her oxygen was 74 and blood pressure was 92/40. The took her to a critical care room and put her on a bi pap machine. Then they moved her to a step down room. I stepped in waiting room to call our daughter who was home watching our youngest one. When I came back into her room there were two nurses in there. And I asked them what was going on with my wife? I was figuring Covid or respiratory infection. The responded by saying she can’t seem to stay awake it appears she is having a overdose. I told them she wasn’t on drugs so that’s impossible. I told them to give her a drug test they said they were going to this was a little after 5. They had started her on fluids and Narcan. From that time till 830 the nurses came in three times and were hateful and rude. At 830 PM I told my wife I was going to check on our daughter. As I stated we had just moved to a fairly rural part of NC and had had some cars come down that we had to run off. The woman we purchased the house from hadn’t lived there for at least a year. So I wanted to check in our girls and come back. I told my wife and she held my hand and told me “ I love you I mean that I want you to remember that don’t ever forget that” I told her I loved her to. And she emphasized again “ I mean that I love you I always have and always will remember that. You will forever be my always”. And I kissed her head and she closed her eyes and laid back in bed. Little did I now that would be the last time that I would speak or see her again. I still didn’t think it was life threatening. When I got home our 22 year old son was there he asked how his mom was and something hit me and I knew she wasn’t going to make it and I told him that. He got mad and told me not to say that. After I checked on girls I was getting ready to drive back to hospital my son said he was going with me. In the drive back it was around 945 PM one of the nurses called my phone. He asked what type of drugs she was on. Well I was livid I asked him if he could read? He asked what I meant I told him you gave her a drug test almost five hours ago so apparently you can’t read. He told me he hadn’t looked at the results yet. I hung up on him. About one minute later the doctor that had just came on duty called me and apologized apparently she had overheard the conversation. She said your wife isn’t having a drug overdose her drug test was negative. I told her to tell her staff that she said she just did. She explained my wife had double pneumonia with her right lung completely impacted. And that has led to sepsis. I didn’t have a clue what sepsis was at the time she explained it to me and said she was going to start treatment and she hoped it would be in time. I asked her what she meant she explained how time sensitive sepsis was and what septic shock could do. I told please don’t let anything happen to her she was my everything. At 1015 PM my cell phone rang I answered and she asked how close to the hospital were we. I replied about 25 minutes if you are calling me to tell me she is not going to make don’t you dare call and tell me that. She stated that she had coded out and they brought her back but didn’t know if she was going to make it. By the time we got to hospital they had brought her back four times. And the doctor had to put me in a room cause I was a complete wreck and she asked what I wanted to do I told to save my wife do your damn job you haven’t all night so do it now. They brought her back 7 times. My son told them to stop they had broken her breast bone her ribs and she had been without oxygen for 28 minutes. He went and told his 45 year old mother goodbye and we loved her. I couldn’t go back I didn’t want to see her like that. She passed at 203AM October 25. The doctors came in there and my son asked why they couldn’t save his mother. They said they didn’t start treatment in time. If they would have started when she got there things may have been different. And another doctor was there looking over her chart and he asked why where they treating her for a overdose why were they giving her Narcan. She had no signs of overdose except not being able to stay awake and that is a sign of sepsis. And with a oxygen level of 74 that’s why she couldn’t stay awake. Security escorted me and my son out along with sheriff officers. I lost my mind I knew they had Mede numerous mistakes I knew they killed my wife. They all got to go home to their families and mine now is devastated. Now we are left to deal with this hell. I can’t remember anything can’t focus I am never happy. Our daughter who is 7 now has anxiety and panic attacks scared something is going to happen to me. I have had to start homeschooling her cause she is scared to leave my side. My other children have had bouts of depression and anxiety. All cause of negligence lack of urgency and misdiagnosis by the staff at the hospital. This was something that could have been prevented if they would have paid attention to her vital signs. We have a lawyer and they have sent her records to a medical expert and they have made a report of clear negligence and deviation of current clinical guidelines. And has said to accept the case. We are sending her records to another expert just to verify that they agree with the first opinion. If they do then we proceed. And I don’t care about money I want accountability for what they did. I want protocol to change. If someone’s life is save then at least her death will mean something. In loving memory of. Teresa Juhl. You will forever be my always
My Name Is Dan and I am now recently a widower from my Best Friend of 25 years, and now have to navigate raising two teenagers without my help mate, and this is her medical story along with others that have similar stories of their own. Join me on this journey as we find help and healing in a broken medical system.